JDRF Announces Release of Global Type 1 Diabetes Index | Fan News

JDRF Announces Release of Global Type 1 Diabetes Index | Fan News
JDRF Announces Release of Global Type 1 Diabetes Index | Fan News

This first-of-its-kind index will help people understand the world The burden and unmet needs of people with type 1 diabetes.

New YorkSeptember 21, 2022 /PRNewswire/ — The world’s leading research and advocacy organization for type 1 diabetes (T1D)Juvenile Diabetes Research Foundation (JDRF) announcing the release Type 1 Diabetes Index (T1D index). The T1D Index is a first-of-its-kind data simulation tool to measure the human and public health impact of T1D crises in every country in the world. To date, data on the incidence and impact of T1D remain widely divergent. Identifying achievable country-specific interventions, including timely diagnosis, access to care, and funding research on cure options, can help transform the lives of people with T1D through data and insights based on the T1D Index.

One of the oldest and most trusted medical journalsThe Lancet Diabetes and Endocrinology(The Lancet Diabetes and Endocrinology) The T1D index and related research have been published on .

T1D is an autoimmune disease and one of the fastest growing chronic diseases. Nearly 9 million people worldwide have T1D. Certain factors, such as family history, increase risk, but T1D is not caused by diet or lifestyle. T1D causes the pancreas to produce very little or no insulin — meaning the body cannot convert food into energy, which can lead to long-term complications, including kidney, eye, nerve, heart damage, and even premature death. There is currently no cure for T1D.

Dr. Aaron Kawaski, Chief Executive Officer of JDRF, said: “As a T1D patient, I know that many people are less fortunate than me to have the resources necessary to live a healthy and fulfilling life. That’s why I’m working for us in Reasons to be extremely proud of the significant progress made in understanding the global impact of T1D through the T1D Index. We call on governments and public health policymakers around the world to use this tool to identify and implement interventions that can change the trajectory of T1D development.”

The JDRF collaborates with key partners and experts around the world to develop the T1D Index, which uses findings from a survey of more than 500 endocrinologists and 400 publications to model T1D status at the global and country levels.

The T1D Index highlights “numbers lost” (the number of people alive today who did not die prematurely from complications of T1D) and “years lost to health” (the number of years lost due to deterioration of health, disability or premature death from T1D) time), illustrates the human burden of T1D in a unique way.

T1D index simulations show that by 2022, more than 3.86 million people are “lost” globally, and assuming that patients are diagnosed with T1D at age 10, each person loses an average of 32 “healthy years”.

For T1D patients, T1D places a huge human, emotional and financial burden on them, and the prevalence is increasing. The T1D Index simulations allowed us to identify four key interventions that could alter the current trajectory of T1D and its impact on people around the world:

  • timely diagnosis: Better education and training for medical professionals so they can accurately diagnose T1D. If the global patient population were to receive timely diagnosis from 2023, 668,000 lives would be saved by 2040.
  • Insulin and test strips: Create hassle-free access to insulin and blood glucose test strips for patients. If the global patient population has access to insulin and test strips from 2023, along with guidance on self-management of the condition, 1.98 million lives will be saved by 2040.
  • Insulin pumps and continuous glucose monitoring (CGM): Ensure that every T1D patient can benefit from automated glucose monitoring and insulin infusion technology. If the global patient population can benefit from this technology from 2023 onwards, 673,000 patients’ lives will be saved by 2040.
  • prevention and treatment: Further investment and support for research into new prevention, treatment and cure options. If we can find a cure, 890,000 lives will be saved by 2040.

Once interventions have been identified at the global and country level, the T1D Index will encourage users to take action, share data and findings with their networks and local decision makers, and connect with other T1D advocates in the community.

In addition, the T1D Index reveals important statistics about the global burden of T1D, including:

  • Since 2000, the prevalence of T1D has grown four times faster than the global population growth rate.
  • It is estimated that by 2040, the number of T1D patients will reach 17.43 million.
  • By 2040, the “loss of people” is expected to reach 6.85 million.

The T1D index data simulation is the best estimate currently available, and its version 1.0 test error with real world data is only +/- 6%. This is a significant improvement over the +/- 35% test error of other existing leading estimates. The T1D index was developed in collaboration with JDRF, Life for a Child, the International Society for Pediatric and Adolescent Diabetes (ISPAD), the International Diabetes Federation (IDF), and Beyond Type 1. The T1D Index was initiated by founding sponsor Abbott and supported by Lilly, Vertex Pharmaceuticals and Leona M. and Harry B. Helmsley Additional support from charitable trusts. In future editions, the T1D index will be expanded to include the impact of T1D on economic cost, mental health, and quality of life. The data will also be broken down at the regional and population level.

you canhereLearn more about the T1D index.

about JDRF

The Juvenile Diabetes Research Foundation (JDRF) mission is to accelerate life-changing breakthroughs to cure, prevent and treat T1D and its complications. To achieve this goal, JDRF has invested more than $2.5 billion in research funding since its inception. JDRF is an organization built on a grassroots model: people connect in local communities, collaborate regionally for efficiency and broader fundraising impact, and then band together at a national level to pool resources, passion and energy. JDRF works with academic institutions, policymakers, and corporate and industry partners to develop and deliver a range of innovative treatments for people with T1D. JDRF staff and volunteers across the United States and five international affiliates work to promote, increase community engagement, and realize the vision of a T1D-free world. For more information, visit jdrf.org or follow on Twitter (@JDRF), Facebook (@myjdrf) and Instagram (@jdrfhq).

about Type 1 diabetes (T1D)

T1D is an autoimmune disease that causes the pancreas to produce very little or no insulin, leading to long-term complications including blood sugar fluctuations; kidney, eye, nerve, and heart damage; and, if left untreated, even death. It is one of the fastest growing chronic diseases. Many people think that T1D is diagnosed only in childhood and early adolescence, but the diagnosis rate in adults is on the rise, accounting for nearly 50% of all T1D diagnoses. The onset of T1D is sudden, and there are currently no preventive measures—it has nothing to do with diet or lifestyle. Although its cause is not fully understood, scientists believe that both genetic factors and environmental triggers can lead to T1D. There is currently no cure for T1D.

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